BE A HERO FOR KIDS LIKE SAM
At Sam’s Superheroes Foundation we support families affected by Febrile Infection-Related Epilepsy Syndrome (FIRES)—a rare and devastating condition that triggers catastrophic and relentless seizures.
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In Sam’s memory, we’re funding critical research, providing financial grants to families, and offering emotional support through animal-assisted therapy and creative toolkits.
ABOUT FIRES
FIRES (Febrile Infection-Related Epilepsy Syndrome) is a rare and catastrophic type of epilepsy that strikes suddenly and explosively, quickly escalating into life-threatening, relentless and difficult to control seizures. The cause of FIRES is still not understood although it is thought to be an overwhelming inflammatory response to a mild viral illness.
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FIRES typically strikes healthy children, with no history of epilepsy, although adults may also be effected. Children require weeks or months in a medically induced coma to try and protect the brain and stop the seizures, undergoing intensive and complex treatments. One in five children won’t survive the acute phase, and survivors often face significant neurological disability.
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With no cure and limited research, FIRES remains poorly understood. More funding is urgently needed to better understand the causes of FIRES, find effective treatments - with the ultimate goal of finding a cure to save lives.
OUR SERVICES
We believe in the power of therapy to support bereaved children, children with mental health challenges, and families affected by FIRES.
SAM'S STORY
Sam was a vibrant, loving five-year-old who adored the outdoors, Lego, superhero toys, and his dog, Daisy. Known for his kindness and wisdom beyond his years, he brought joy to everyone around him.
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In March 2021, Sam fell critically ill after what seemed like a routine virus. Despite having no history of epilepsy, he was suddenly struck down by FIRES (Febrile Infection Related Epilepsy Syndrome) triggering explosive and unstoppable seizures.
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FIRES is a rare and devastating condition affecting one in a million children. Despite seven weeks in a medically induced coma, intensive treatments and extraordinary courage, Sam passed away on the 8th May 2021 surrounded by love.
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Sam’s Superheroes honours his memory by raising awareness of FIRES, funding vital research, and supporting families affected by this life-changing condition. Together, we can bring hope to children like Sam.
HEROES ASSEMBLE!
Join our Mission to Raise £50,000!
Little is known about FIRES – with no clear cause, no definitive treatment, and most heartbreakingly no cure. Whilst it’s thought to be a rare immune/inflammatory response to a minor viral infection - research is only just beginning to uncover its mechanisms.
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Medical research is the key to unlocking answers, and funding is crucial to driving progress. Without research, FIRES will continue to steal the lives of innocent healthy children and devastate families lives.
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We are on a mission to raise £50,000 to fund vital research that could save children like Sam. Every donation, no matter how big or small, takes us a step closer to understanding this disease, improving treatments, and ultimately finding a cure.
MEET DAISY THE SUPER THERAPY DOG
Daisy is more than just a therapy dog—she is actually Sam’s beloved black labrador. She visited Sam when he was in critical care and brought Sam’s entire family immense comfort.
Daisy is now the star of our charity - a source of comfort, joy, and healing for children facing mental and emotional health challenges. With her wagging tail and gentle nature, Daisy has a special way of making children smile, easing anxiety, and bringing warmth to tough days.
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Whether she’s visiting children in therapy sessions or lending a paw of support during difficult times, Daisy embodies the love and hope that Sam’s Superheroes stands for.
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Fun Fact: Daisy loves belly rubs and is an expert at cheering people up with her playful spirit!
HELP FIGHT FIRES
Your donation can drive groundbreaking research, offer animal-assisted therapy, deliver creative therapy toolkits to children in hospitals, and provide essential financial grants to families navigating life with FIRES.
Every contribution matters. Whether it's a one-time gift or ongoing support, you're helping us bring hope, care, and progress to those who need it most.
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Join us in honouring Sam’s legacy—together, we can make a real difference.