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PRIVACY POLICY

Sam's Superheroes Foundation Charity Number: 1210458
Website: https://samssuperheroes.co.uk
Contact: 07880 343416
Email: rachel@samssuperheroes.co.uk

 

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INTRODUCTION

 

At Sam's Superheroes Foundation, we are committed to protecting your privacy and handling all personal data in accordance with UK GDPR. This Privacy Policy explains how we collect, use, and safeguard your information when you visit our website (https://samssuperheroes.co.uk/) or contact us through other means.

 

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WHO WE ARE​

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Sam's Superheroes Foundation (Charity Number: 1210458) is a registered charity dedicated to improving the lives of those affected by NORSE and FIRES through family support, wellbeing services, research and awareness. 

 

 

WHAT INFORMATION WE COLLECT​

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We may collect and process the following information about you:

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  • Personal Identifiable Information: Name, email address, postal address, phone number, date of birth, and payment information.

  • Technical Data: IP address, browser type, and browsing history on our website.

  • Communication Data: Details of your correspondence with us, including email exchanges

  • Special Category Data: We may collect health information relating to the person affected by NORSE or FIRES and, where relevant, their family members or carers, where this is necessary to provide support, assess grant applications, or deliver our charitable services. 

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HOW WE USE YOUR INFORMATION​

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We use your information to:

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  • Process donations and provide receipts.

  • Respond to inquiries and provide support.

  • Keep you updated about our work, events, and fundraising campaigns (if you opt-in).

  • Improve our website and services.

  • Comply with legal obligations.

  • Assess and administer our grant applications

  • Provide family support, including support delivered by our specialist epilepsy nurse and counsellor.

  • Deliver our therapy dog and well being services where appropriate.

  • Communicate with healthcare professionals named on an application where necessary to verify information or support our charitable activites.

  • Monitor and evaluate the impact of our services to improve support for families.

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SHARING YOUR INFORMATION​

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We will never sell, trade or rent your personal information. We may share information with trusted healthcare professionals, schools, education providers, counsellors, therapists, therapy dog practitioners, researchers, partner charities, and other organisations or professionals who are involved in delivering our charitable services or supporting you or your family. we will only share information where it is necessary, lawful, and appropriate, in accordance with UK GDPR, and under appropriate confidentiality arrangements. 

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Where we rely on your consent to share information, we will ask for this before doing so unless sharing is otherwise permitted or required by law. We will only share the minimum information necessary for the purpose for which it is required. 

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YOUR GDPR RIGHTS​

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Under GDPR, you have the following rights regarding your personal data:

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  • Access: Request a copy of the personal data we hold about you.

  • Rectification: Ask us to correct any inaccurate or incomplete data.

  • Erasure: Request that we delete your data (“right to be forgotten”), where applicable.

  • Restriction: Request a temporary halt on processing your data in certain circumstances.

  • Data Portability: Receive a copy of your data in a structured, commonly used format.

  • Objection: Object to the processing of your data for specific purposes.

  • Withdraw Consent: If we rely on your consent, you can withdraw it at any time without affecting the lawfulness of prior processing.

 

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COOKIES​

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Our website uses cookies to improve your experience. Cookies are small files placed on your computer to track website usage. You can set your browser to refuse all or some cookies.

 

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CONTACT US​

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If you have any questions or concerns about this Privacy Policy or how we handle your personal data, please contact us:

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You can also contact the UK’s data protection authority, the Information Commissioner’s Office (ICO), if you’re unhappy with how we’ve handled your data. Visit www.ico.org.uk or call 0303 123 1113.

 

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CHANGES TO THIS POLICY​

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We may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated revision date. Please review this policy periodically to stay informed about how we are protecting your information.

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Last Updated: July 2026

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