We are absolutely delighted to announce our first £110,000 NORSE and FIRES epilepsy research collaboration with the Epilepsy Research Institute has now been formally approved and included within the Institute’s national research portfolio for 2026/27. It will be starting towards the end of this year.

Families Driven By Love: Three UK NORSE & FIRES Families United by Loss and a Determination to Create Change attend the Epilepsy Research Institutes Supporters Reception where they announced their 11 new research investments for 2026/27

NORSE and FIRES were raised in UK Parliament for the first time when Samantha Niblett MP spoke in the House of Commons on behalf of Sam's Superheroes Foundation and families affected by these devastating neurological conditions.

We're thrilled to share more huge news. On Christmas day 2025, we officially reached our £50,000 fundraising milestone — representing our charity’s contribution towards a £110,000 UK research collaboration with the Epilepsy Research Institute to support UK-led research into NORSE and FIRES. We reached this milestone on Christmas day 2025 after an incredibly generous £4,000 donation from local businessman Mark Gregory, of Derbyshire Contracting Services. He gave it as a Christ

Sam’s Superheroes Foundation has officially partnered with the Epilepsy Research Institute to co-fund vital research into FIRES (Febrile Infection Related Epilepsy Syndrome)

Thanks to the RNLI, Sam’s name is engraved in the decals of the Shannon-class lifeboat, Duke of Edinburgh a moving tribute to loved ones whose legacies live on through lifesaving.

Mickleover FC feature Sam’s Superheroes’ logo on this season’s home game football kit shorts completely free of charge.

Rachel shares Sam’s story and highlights ways to stand alongside families affected by this rare epilepsy syndrome.

A massive superhero THANK YOU to the incredible Sam Capps, who quite literally took the plunge for Sam's Superheroes jumping out of a plane and raising a phenomenal £500 for Febrile Infection Related Epilepsy Syndrome medical research!

We’re over the moon to share that Sam’s Superheroes Foundation has been named “Charity of the Year” at the Lots for Tots Derbyshire Awards a first award for the Foundation and a beautiful tribute to Sam.

On Friday 20th September 2024, we set off on a challenge like no other — Sam’s Big Scoot to help reach our £50,000 target for UK FIRES research.