REAL PEOPLE, REAL STORIES

NORSE and FIRES are rare, but the impact is very real. Behind every diagnosis is a person, a family, and a story that matters.

Would you like to share your NORSE or FIRES story?

We would be honoured to share your loved ones story on our website. Your contribution will not only bring comfort to other families facing New Onset Refractory Status Epilepticus (NORSE) or Febrile Infection Related Epilepsy Syndrome (FIRES), but helps raise awareness of these rare, life-threatening conditions.

HELP US TURN THEIR STORIES INTO HOPE FOR FUTURE FAMILIES

Every donation, big or small, makes a real difference. Your support helps us fund vital research into NORSE and FIRES, and ensures that no family has to face these devastating conditions alone. If you can give, please do.