WHAT WE DO
At Sam’s Superheroes Foundation, we are the UKs only registered charity dedicated to NORSE and FIRES. We work to improve outcomes for children, adults and families affected by these devasting neurological conditions through three pillars:
RESEARCH
AWARENESS
FAMILY SUPPORT
Everything we do is shaped by lived experience and driven by one clear purpose: to improve understanding, advance research and ensure that no family faces this journey alone.
OUR VISION
Together, we are building a future where greater awareness acts as the catalyst for change — driving earlier recognition, strengthening collaboration, accelerating research.
This will lead to more effective treatments, stronger family support, and ultimately better outcomes, so that everyone affected by NORSE and FIRES has access to the understanding, care and hope they deserve.
OUR WORK
Everything we do is driven by one shared mission: to improve outcomes for children, adults and families affected by NORSE and FIRES. Through pioneering research, national awareness and compassionate family support, we are helping build a better future for everyone affected by these devastating conditions.
We deliver our mission through three connected areas of work, each strengthening the others to improve outcomes for everyone affected by NORSE and FIRES.
Explore our three core areas below:
