£50,000 Milestone Reached for UK-Led NORSE & FIRES Research

We're thrilled to share more huge news! On Christmas day 2025, we officially reached our £50,000 commitment, representing our charity’s contribution to a £110,000 UK research collaboration with the Epilepsy Research Institute, supporting UK-led research into NORSE and FIRES!

This will fund only the second UK research study into these devastating conditions. The research application process is currently underway, and we hope to see the study commence in Autumn 2026.

The research application process is currently underway, and we hope to see the study commence in Autumn 2026.

We’ll continue to share updates as the research progresses.