We're thrilled to share more huge news! On Christmas day 2025, we officially reached our £50,000 commitment, representing our charity’s contribution to a £110,000 UK research collaboration with the Epilepsy Research Institute , supporting UK-led research into NORSE and FIRES! This will fund only the second UK research study  into these devastating conditions. The research application process is currently underway, and we hope to see the study commence in Autumn 2026 . The res

Sam’s Superheroes Foundation has officially partnered with the Epilepsy Research Institute to co-fund vital research into FIRES (Febrile Infection Related Epilepsy Syndrome)

Thanks to the RNLI, Sam’s name is engraved in the decals of the Shannon-class lifeboat, Duke of Edinburgh a moving tribute to loved ones whose legacies live on through lifesaving.

Mickleover FC feature Sam’s Superheroes’ logo on this season’s home game football kit shorts completely free of charge.

Rachel shares Sam’s story and highlights ways to stand alongside families affected by this rare epilepsy syndrome.

A massive superhero THANK YOU to the incredible Sam Capps, who quite literally took the plunge for Sam's Superheroes jumping out of a plane and raising a phenomenal £500 for Febrile Infection Related Epilepsy Syndrome medical research!

We’re over the moon to share that Sam’s Superheroes Foundation has been named “Charity of the Year” at the Lots for Tots Derbyshire Awards a first award for the Foundation and a beautiful tribute to Sam.

On Friday 20th September 2024, we set off on a challenge like no other — Sam’s Big Scoot to help reach our £50,000 target for UK FIRES research.