Adrian died in February 2026 from FIRES. He was just 8 years old, and a much loved son, brother, grandson, nephew and friend.

Joe died in 2024 from NORSE. He was just 29 years old, and a much loved son, brother, grandson, partner and friend.

A-Ling was just 4 years old when she developed FIRES in 2024. She survived, and now lives with significant neurological disabilities and ongoing care needs.

Sam died in 2021 from NORSE. He was just 28 years old, and a much loved husband, son, brother and father to three young children.