SAM'S SCOOTATHON. TWO DAYS. 55 MILES. PURE DETERMINATION.
Sam's Scootathon is an epic kick scooter challenge that takes you from Aston University in Birmingham all the way to Sam's hometown of Derby. No electric scooters, no shortcuts, just muscle power, teamwork and an incredible shared purpose.
Along the way we raise awareness of NORSE and FIRES, share Sam's story, and spark conversations in every community we pass through. It is a challenge, an adventure, and a movement all rolled into one.
Are you in?
"FIRES patients and their families are etched in the clinician's heart forever. Scoot with us in Sam's memory to support further research. Let's make Sam one of the last children to lose their life or childhood due to this devasting disease."
Dr Kaliakatsos
Consultant Neurologist | Great Ormond Street Hospital
ABOUT NORSE & FIRES
New Onset Refractory Status Epilepticus (NORSE) and Febrile Infection Related Epilepsy Syndrome (FIRES) are rare, life-threatening neurological emergencies.
They come out of nowhere, often after a mild illness, and mostly affect children and young people.
Within hours or days, seizures escalate into relentless, hard-to-control activity. Many patients spend weeks or months in intensive care, often in medically induced comas.
Outcomes are devastating.
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The underlying cause remains poorly understood.
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There is currently no known cure.
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Around 1 in 5 people do not survive.
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While recovery is possible, survivors are frequently left with significant life-long neurological disability, chronic epilepsy and complex care needs.
REAL PEOPLE, REAL STORIES
Sam's Scootathon is held in loving memory of Sam, who was just five years old when FIRES took his life. Money raised goes towards funding vital research into NORSE and FIRES, supporting families navigating these devastating conditions, and providing grants to those who need it most.
Read their stories here.
EQUIPMENT HIRE
Already have your own scooter and helmet? Great, you’re good to go. If not, you can hire everything you need from us at no cost. You’ll receive your scooter in advance, giving you plenty of time to train and feel confident ahead of the challenge.
In return, we ask for a minimum fundraising commitment of £300 to support our work.
Don't Forget Gift Aid
When you share your fundraising page, remind your supporters to tick the Gift Aid box when they donate. It costs them nothing but means we can claim an extra 25p for every £1 given, making your fundraising go even further.
OUR EVENT SPONSORS
Behind every mile of this event are the sponsors who’ve helped make it possible. We’re incredibly thankful for their generosity and belief in what we’re doing.
If your business would like to support the event, please contact us on rachel@samssuperheroes.co.uk
START YOUR FUNDRAISING JOURNEY
Kick off your fundraising for the Scootathon by creating your own personal JustGiving fundraising page. Link it to our main event page to track your progress, share your story, and personalise your fundraising journey.
We ask everyone to aim for a minimum of £300, helping us fund vital research and make every mile count.
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