I never imagined that when Sam was born so healthy and perfect, that just over five years later I would be arranging his funeral. Five years ago today — 10 June 2021 — Sam’s family, friends and teachers gathered together to say goodbye to the most beautiful little boy. Sam's Church Service The night before Sam's funeral, I decorated the church with his paintings, drawings, dressing up clothes, scooter, bike and all the things that were just Sam. I just needed the church to be

We are absolutely delighted to announce our first £110,000 NORSE and FIRES epilepsy research collaboration with the Epilepsy Research Institute has now been formally approved and included within the Institute’s national research portfolio for 2026/27. It will be starting towards the end of this year.

Families Driven By Love: Three UK NORSE & FIRES Families United by Loss and a Determination to Create Change attend the Epilepsy Research Institutes Supporters Reception where they announced their 11 new research investments for 2026/27