I never imagined that when Sam was born so healthy and perfect, that just over five years later I would be arranging his funeral. Five years ago today — 10 June 2021 — Sam’s family, friends and teachers gathered together to say goodbye to the most beautiful little boy. Sam's Church Service The night before Sam's funeral, I decorated the church with his paintings, drawings, dressing up clothes, scooter, bike and all the things that were just Sam. I just needed the church to be

We are absolutely delighted to announce our first £110,000 NORSE and FIRES epilepsy research collaboration with the Epilepsy Research Institute has now been formally approved and included within the Institute’s national research portfolio for 2026/27. It will be starting towards the end of this year.

NORSE and FIRES were raised in UK Parliament for the first time when Samantha Niblett MP spoke in the House of Commons on behalf of Sam's Superheroes Foundation and families affected by these devastating neurological conditions.