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£50,000 Milestone Reached for UK-Led NORSE & FIRES Research!
We're thrilled to share more huge news. On Christmas day 2025, we officially reached our £50,000 fundraising milestone — representing our charity’s contribution towards a £110,000 UK research collaboration with the Epilepsy Research Institute to support UK-led research into NORSE and FIRES. We reached this milestone on Christmas day 2025 after an incredibly generous £4,000 donation from local businessman Mark Gregory, of Derbyshire Contracting Services. He gave it as a Christ
Jan 132 min read


We’re Proud to Announce our Partnership with the Epilepsy Research Institute
Sam’s Superheroes Foundation has officially partnered with the Epilepsy Research Institute to co-fund vital research into FIRES (Febrile Infection Related Epilepsy Syndrome)
Aug 18, 20253 min read


A Lifeboat with Sam’s Name: A Lasting Tribute in Wells
Thanks to the RNLI, Sam’s name is engraved in the decals of the Shannon-class lifeboat, Duke of Edinburgh a moving tribute to loved ones whose legacies live on through lifesaving.
Aug 13, 20253 min read


Mickleover FC Supporting Sam’s Superheroes
Mickleover FC feature Sam’s Superheroes’ logo on this season’s home game football kit shorts completely free of charge.
Jul 14, 20252 min read


Raising Awareness: Sharing Sam’s Story at the Epilepsy Research Institute Annual Dinner
Rachel shares Sam’s story and highlights ways to stand alongside families affected by this rare epilepsy syndrome.
Jul 3, 20252 min read


A Sky-High Thank You to Fundraising Superhero, Sam Capps!
A massive superhero THANK YOU to the incredible Sam Capps, who quite literally took the plunge for Sam's Superheroes jumping out of a plane and raising a phenomenal £500 for Febrile Infection Related Epilepsy Syndrome medical research!
Jun 16, 20252 min read


Sam’s Superheroes wins “Charity of the Year” at the Lots for Tots Derbyshire Awards
We’re over the moon to share that Sam’s Superheroes Foundation has been named “Charity of the Year” at the Lots for Tots Derbyshire Awards a first award for the Foundation and a beautiful tribute to Sam.
Apr 17, 20253 min read


A-Ling Lie
A-Ling was just 4 years old when she developed FIRES in 2024. She survived, and now lives with significant neurological disabilities and ongoing care needs.
Dec 31, 20241 min read


Sam’s Big Scoot: An Epic Fundraising Journey for FIRES Research
On Friday 20th September 2024, we set off on a challenge like no other — Sam’s Big Scoot to help reach our £50,000 target for UK FIRES research.
Sep 23, 20242 min read

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